Endometrisosis Facts

endo-what

ENDO What?

Endometriosis Information

‘Endo what?’ is a common refrain that those with endometriosis here over and over again (which is, of course, why we are #endomarching). So, to help you get up to speed on just what endometriosis is, listed below are some excellent educational resources and support groups, many of which are provided by our fellow MWMFE #endomarchers.

Endometriosis Fact Sheets

One of the best fact sheets we’ve seen on endometriosis can be found here.
The NIH-supported Women’s Health website also has the following fact sheet.
A more detailed overview of endometriosis, including top myths, can be viewed here.

Women With Endometriosis Explain Their Pain

Below is a meticulously curated blog by one of our amazing volunteers that doesn’t mince words about what it really feels like to have endo. After reading this, we’re sure you’ll walk away wondering how it could be that such a horrific disease is so rarely mentioned in mainstream news. “What the mind doesn’t know, the eye doesn’t see.” This is why we are #endomarching:
http://endosuxs.blogspot.com/2014/01/women-with-endometriosis-explain-their.html

Support & Research Groups

We’d like to express our gratitude to the dozens of support groups that are providing not only compassionate support, but exceptional educational resources for those with endometriosis and other disabling disorders.

Those listed below have been brought to our attention by the worldwide team of MWMFE volunteers as some of their favorite! Please feel free to email us at info@endomarch.org, if you would like to suggest other support groups to be listed here. Thank you again, #Endomarchers of the World!

International, USA-based

Endo Doesn’t Define You

https://www.facebook.com/events/314756032020041

Endosister

http://www.endosisters.org/blog.html

My Endometriosis Story

https://www.facebook.com/myenometriosisstory

http://www.myendometriosisstory.org

Powerful Endo Women

https://www.facebook.com/groups/PowerfulEndoWomen


Endo Sisters Healing Together

https://www.facebook.com/groups/EndoSistersHealingTogether

Endo Sisters 2014 (Support & Pen Pal Program)

https://www.facebook.com/groups/endosisters2014

Endometriosis Awareness Through Art


https://www.facebook.com/EndometriosisAwarenessThroughArt

Endo Support Groups’ Community Forum

https://www.facebook.com/groups/444020549046536

Nancy’s Nook

https://www.facebook.com/groups/418136991574617

Thoracic Endometriosis/LUNG Endo Group

https://www.facebook.com/groups/Lungendo

Endo Warriors

http://endowarriorssupport.com

https://www.facebook.com/endowarriorssupport

 

National

Endometriosis

endofound.org

www.endocenter.org

www.endometriosis.org

www.endometriosisassn.org

https://www.facebook.com/endowarriorssupport

https://www.facebook.com/pages/Endometriosis-Infertility-and-Pelvic-Pain-Management/125680694168812

Fertility

www.resolve.org


Endo Sisters Healing Together

https://www.facebook.com/groups/EndoSistersHealingTogether

Regional Groups – Endometriosis

Alabama

http://endoendshere.org

Alaska

Arizona

Arkansas

California

Team California – Worldwide Endo March (MWMFE)

https://www.facebook.com/groups/230356850473558

Endometriosis Women of California

https://www.facebook.com/groups/CaliforniaEndometriosisSupport

Northern California Endo Group

https://www.facebook.com/groups/155289371317313

Colorado

Endo Warriors, Contact Jessica (Jez) Root at JezEWDenver@gmail.com

Connecticut

https://www.facebook.com/EndoConnect

https://www.facebook.com/Sistergirl.2011

Delaware

Florida

Georgia

Hawaii

Idaho

Illinois

Indiana

Iowa

Kansas

Kentucky

http://www.yellowforendo.com

Louisiana

Maine

Maryland

https://www.facebook.com/EndometriosisWarriorsMaryland

Massachusetts

Endo Sisters Healing Together

https://www.facebook.com/groups/EndoSistersHealingTogether

Michigan

Minnesota

 

Endo Twin Cities – Endometriosis Support

Email: endotwincities@gmail.com

Website: www.endosupport.com

Facebook: www.facebook.com/EndoTwinCitiesPublic

Twitter: www.twitter.com/EndoTwinCities

LinkedIn: www.linkedin.com/in/endotwincities

Mississippi

https://www.facebook.com/groups/1449016298647630

Missouri

https://www.facebook.com/groups/ERCGirlTalk

Montana

Nebraska

Nevada

New Hampshire

New Jersey

Endo Warriors, Contact Lauren Tait at tait.lauren.e@gmail.com

New Mexico

New York

Endo Warriors – NYC, Contact Jill Fuersich at endowarriors@gmail.com

Endo Warriors – Westchester, Contact Casey Berna at angelcase@aol.com

North Carolina

http://www.meetup.com/Endo-Sisters-of-The-Triad/messages/boards/thread/42771612

North Dakota

Ohio

Team Ohio – WorldwideEndoMarch

https://www.facebook.com/pages/Endo-Sisters-United-Team-Ohio/225143191011611

Oregon
EndoMarch Team Oregon

https://www.facebook.com/groups/endomarchteamoregon

 

Pennsylvania

Endo Warriors, Contact
Valerie Conners at valeriewconners@gmail.com

Rhode Island

South Carolina

South Dakota

Tennessee
West Tennessee Endometriosis and Chronic Pelvic Pain Support Group.

https://www.facebook.com/WestTNEndoSupportGroup

Texas

Tri-State Area (New York, New Jersey, Connecticut)

https://www.facebook.com/endowarriorssupport

Utah

Vermont

Virginia

Washington, D.C.

Washington State

West Virginia

Wisconsin

EndoSisters Wisconsin

http://www.myendometriosisstory.org

Wyoming

International

 

Argentina

 

Australia

http://www.qendo.org.au

http://www.endometriosisaustralia.org

Australia and New Zealand Endo Women

https://www.facebook.com/groups/australianendo

Thoracic Endometriosis/LUNG Endo Group

https://www.facebook.com/groups/Lungendo

Brazil

https://www.facebook.com/endometriosemulher

https://www.facebook.com/endometrioseeeu

http://aendometrioseeeu.blogspot.com/2013/09/com-palavra-o-especialista-doutor-helio_26.html?spref=fb

GAPENDI- Grupo de Apoio as Portadoras de Endometriose e Infertilidade

www.eutenhoendometriose.blogspot.com

https://www.facebook.com/groups/gapendi/775275379179454

Canada

http://endometriosisnetwork.com

http://endendoforever.blogspot.ca

Denmark

http://endo.dk

Finland – Nordic Alliance

http://www.endometrioosiyhdistys.fi/

France

http://www.endofrance.org

http://lillih.endometriose.free.fr

https://www.facebook.com/groups/355353137928822

http://www.mon-endo-ma-souffrance.fr

http://qu-est-ce-que-l-endometriose.webnode.fr

http://www.ensemblecontrelendometriose.fr

German Language

https://www.facebook.com/groups/493921817312336

Germany

https://www.facebook.com/pages/Endometriose/299627116834232

http://kuttinger.blogspot.de/

Iceland
Endometriosis Association of Iceland

www.endo.is

https://www.facebook.com/endometriosa

Ireland

https://www.facebook.com/EndoIreland

Italy

https://www.facebook.com/groups/356820991011460

http://www.aendoassociazione.com

https://www.facebook.com/groups/1375681339366580

http://mammiferadigitale.blogspot.it/2014/07/lalimentazione-contro-lendometriosi.html

Team Italy EndoMarch

https://www.facebook.com/groups/418136991574617

Jamaica

http://basejamaica.com

Netherlands

Endo Warriors – The Netherlands, Contact Mandy_Smeets@live.nl

EndoMetropolis

https://www.facebook.com/groups/418136991574617

 

New Zealand

http://www.nzendo.co.nz/

Australia and New Zealand Endo Women

https://www.facebook.com/groups/australianendo

Panama
Asociación Endometriosís Panamá (AENPA)

http://www.aenpa.com
https://www.facebook.com/endometriosispanama

Peru

Asociacion Peruana de Endometriosis, APEndo

 

Poland

https://www.facebook.com/polskiestowarzyszenieendometrioza

Portugal
MulherEndo – Portuguese Association of Support for Women with Endometriosis

http://www.mulherendo.pt

Puerto Rico

https://www.facebook.com/FundacionEndometriosisPR

South Africa

https://www.facebook.com/endowarrior

Spain

Asociacion Estatal Afectados de Endometriosis (ADAEC)

https://sites.google.com/site/endometriosismujeresinformando https://www.facebook.com/ENDOMETRIOSISADAEC

Spanish language

http://infoendometriosis.jimdo.com/endometriosis-y-cultura-popular/famosas-con-endometriosis/

Switzerland

Endo Help

http://www.endo-help.ch/de

UK

http://www.endometriosis-uk.org

http://shetrust.org.uk

http://projectendo.co.uk

http://www.endo-resolved.com (UK)

Other

Endometriosis ThirdWorld: https://www.facebook.com/endoawareness3rdworld

https://www.facebook.com/events/751424914871232/

For young women and girls

https://www.facebook.com/groups/ERCGirlTalk

 


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