Endometrisosis Facts

ENDO What?

Endometriosis Information

‘Endo what?’ is a common refrain that those with endometriosis here over and over again (which is, of course, why we are #endomarching). So, to help you get up to speed on just what endometriosis is, listed below are some excellent educational resources and support groups, many of which are provided by our fellow MWMFE #endomarchers.

Endometriosis Fact Sheets

European Society for Human Reproduction and Embryology (ESHRE) Updated Guideline On Endometriosis Management
One of the best fact sheets we’ve seen on endometriosis can be found here.
The NIH-supported Women’s Health website also has the following fact sheet.
One of the best short videos we’ve seen on endometriosis can be found here.
An excellent infographic on endometriosis that would be great for sharing on social media:can be found here.
A more detailed overview of endometriosis, including top myths, can be viewed here.

Women With Endometriosis Explain Their Pain

Below is a meticulously curated blog by one of our amazing volunteers that doesn’t mince words about what it really feels like to have endo. After reading this, we’re sure you’ll walk away wondering how it could be that such a horrific disease is so rarely mentioned in mainstream news. “What the mind doesn’t know, the eye doesn’t see.” This is why we are #endomarching:
http://endosuxs.blogspot.com/2014/01/women-with-endometriosis-explain-their.html

Support & Research Groups

We’d like to express our gratitude to the dozens of support groups that are providing not only compassionate support, but exceptional educational resources for those with endometriosis and other disabling disorders.

Those listed below have been brought to our attention by the worldwide team of MWMFE volunteers as some of their favorite! Please feel free to email us at info@endomarch.org, if you would like to suggest other support groups to be listed here. Thank you again, #Endomarchers of the World!

National & International Research & Support Organizations (alphabetical)

Endometriosis Association
www.endometriosisassn.org

Endometriosis Foundation of America
www.endofound.org

Endometriosis Research Center
www.endocenter.org

RESOLVE: The National Infertility Association
www.resolve.org

World Endometriosis Society
http://endometriosis.ca/

World Symposium on Endometriosis
http://www.endometriosisatlanta.com/

 

Support Groups (US-based, alphabetical)

EndoConnect
https://www.facebook.com/EndoConnect

Endo Doesn’t Define You
https://www.facebook.com/events/314756032020041

Endosisters.org
http://www.endosisters.org/blog.html

Endo Sisters 2014 (Support & Pen Pal Program)
https://www.facebook.com/groups/endosisters2014

Endo Sisters Healing Together
https://www.facebook.com/groups/EndoSistersHealingTogether

Endo Support
www.endosupport.com

Endo Support Groups’ Community Forum
https://www.facebook.com/groups/444020549046536

Endo Warriors
http://endowarriorssupport.com
https://www.facebook.com/endowarriorssupport

Endometriosis Women of California
https://www.facebook.com/groups/CaliforniaEndometriosisSupport

Her Yellow Ribbon
http://www.heryellowribbon.org/

My Endometriosis Story
https://www.facebook.com/myenometriosisstory
http://www.myendometriosisstory.org

Nancy’s Nook
https://www.facebook.com/groups/418136991574617

Powerful Endo Women
https://www.facebook.com/groups/PowerfulEndoWomen
https://www.facebook.com/pages/Endometriosis-Infertility-and-Pelvic-Pain-Management/125680694168812

Sister Girl Foundation, Inc.
https://www.facebook.com/Sistergirl.2011

Thoracic Endometriosis/LUNG Endo Group
https://www.facebook.com/groups/Lungendo

Yellow For Endo
http://www.yellowforendo.com

Regional Groups – Endometriosis

Alabama
http://endoendshere.org

Alaska

Arizona

Arkansas

California

Team California – Worldwide Endo March (MWMFE)

https://www.facebook.com/groups/230356850473558

Endometriosis Women of California
https://www.facebook.com/groups/CaliforniaEndometriosisSupport

Northern California Endo Group
https://www.facebook.com/groups/155289371317313

Colorado
Endo Warriors, Contact Jessica (Jez) Root at JezEWDenver@gmail.com

Connecticut
https://www.facebook.com/EndoConnect
https://www.facebook.com/Sistergirl.2011

Delaware

Florida

Georgia

Hawaii

Idaho

Illinois

Indiana

Iowa

Kansas

Kentucky
http://www.yellowforendo.com

Louisiana

Maine

Maryland
https://www.facebook.com/EndometriosisWarriorsMaryland

Massachusetts
Endo Sisters Healing Together

https://www.facebook.com/groups/EndoSistersHealingTogether

Michigan

Minnesota

Endo Twin Cities – Endometriosis Support
Email: endotwincities@gmail.com
Website: www.endosupport.com
Facebook: www.facebook.com/EndoTwinCitiesPublic
Twitter: www.twitter.com/EndoTwinCities
LinkedIn: www.linkedin.com/in/endotwincities

Mississippi
https://www.facebook.com/groups/1449016298647630

Missouri
https://www.facebook.com/groups/ERCGirlTalk

Montana

Nebraska

Nevada

New Hampshire

New Jersey
Endo Warriors, Contact Lauren Tait at tait.lauren.e@gmail.com

New Mexico

New York
Endo Warriors – NYC, Contact Jill Fuersich at endowarriors@gmail.com
Endo Warriors – Westchester, Contact Casey Berna at angelcase@aol.com

North Carolina
http://www.meetup.com/Endo-Sisters-of-The-Triad/messages/boards/thread/42771612

North Dakota

Ohio

Team Ohio – WorldwideEndoMarch
https://www.facebook.com/pages/Endo-Sisters-United-Team-Ohio/225143191011611

Oregon
EndoMarch Team Oregon
https://www.facebook.com/groups/endomarchteamoregon

Pennsylvania
Endo Warriors, Contact Valerie Conners at valeriewconners@gmail.com

Rhode Island

South Carolina

South Dakota

Tennessee
West Tennessee Endometriosis and Chronic Pelvic Pain Support Group.

https://www.facebook.com/WestTNEndoSupportGroup

Texas

Tri-State Area (New York, New Jersey, Connecticut)
https://www.facebook.com/endowarriorssupport

Utah

Vermont

Virginia

Washington, D.C.

Washington State

West Virginia

Wisconsin
EndoSisters Wisconsin
http://www.myendometriosisstory.org

Wyoming

International

Argentina

 

Australia
http://www.qendo.org.au
http://www.endometriosisaustralia.org

Australia and New Zealand Endo Women

https://www.facebook.com/groups/australianendo

Thoracic Endometriosis/LUNG Endo Group

https://www.facebook.com/groups/Lungendo

Brazil
https://www.facebook.com/endometriosemulher
https://www.facebook.com/endometrioseeeu
http://aendometrioseeeu.blogspot.com/2013/09/com-palavra-o-especialista-doutor-helio_26.html?spref=fb

GAPENDI- Grupo de Apoio as Portadoras de Endometriose e Infertilidade
www.eutenhoendometriose.blogspot.com
https://www.facebook.com/groups/gapendi/775275379179454

Canada
http://endometriosisnetwork.com
http://endendoforever.blogspot.ca

Denmark
http://endo.dk

Finland – Nordic Alliance
http://www.endometrioosiyhdistys.fi/

France
http://www.endofrance.org
http://lillih.endometriose.free.fr
https://www.facebook.com/groups/355353137928822
http://www.mon-endo-ma-souffrance.fr
http://qu-est-ce-que-l-endometriose.webnode.fr
http://www.ensemblecontrelendometriose.fr

German Language
https://www.facebook.com/groups/493921817312336

Germany
https://www.facebook.com/pages/Endometriose/299627116834232
http://kuttinger.blogspot.de/

Iceland
Endometriosis Association of Iceland
www.endo.is
https://www.facebook.com/endometriosa

Ireland
https://www.facebook.com/EndoIreland

Italy
https://www.facebook.com/groups/356820991011460

http://www.aendoassociazione.com
https://www.facebook.com/groups/1375681339366580
http://mammiferadigitale.blogspot.it/2014/07/lalimentazione-contro-lendometriosi.html

Team Italy EndoMarch
https://www.facebook.com/groups/418136991574617

Jamaica
http://basejamaica.com

Netherlands
Endo Warriors – The Netherlands, Contact Mandy_Smeets@live.nl

EndoMetropolis
https://www.facebook.com/groups/418136991574617

New Zealand
http://www.nzendo.co.nz/

Australia and New Zealand Endo Women

https://www.facebook.com/groups/australianendo

Panama
Asociación Endometriosís Panamá (AENPA)
http://www.aenpa.com
https://www.facebook.com/endometriosispanama

Peru
Asociacion Peruana de Endometriosis, APEndo

Poland
https://www.facebook.com/polskiestowarzyszenieendometrioza

Portugal
MulherEndo – Portuguese Association of Support for Women with Endometriosis
http://www.mulherendo.pt

Puerto Rico
https://www.facebook.com/FundacionEndometriosisPR

South Africa
https://www.facebook.com/endowarrior

Spain
Asociacion Estatal Afectados de Endometriosis (ADAEC)
https://sites.google.com/site/endometriosismujeresinformando https://www.facebook.com/ENDOMETRIOSISADAEC

Spanish language
http://infoendometriosis.jimdo.com/endometriosis-y-cultura-popular/famosas-con-endometriosis/

Switzerland
Endo Help
http://www.endo-help.ch/de

UK
http://www.endometriosis-uk.org
http://shetrust.org.uk

http://projectendo.co.uk
http://www.endo-resolved.com (UK)

Other
Endometriosis ThirdWorld: https://www.facebook.com/endoawareness3rdworld

https://www.facebook.com/events/751424914871232/

For young women and girls
https://www.facebook.com/groups/ERCGirlTalk

 


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